Frequently Asked Questions

What causes craniosynostosis?

In the majority of cases of single suture craniosynostosis, it is an isolated incident and the cause is unknown.  There are, however, some syndromes that include craniosynostosis as a common trait.  The percentage of cases of cranio that occur as part of a syndrome is about 20%.  Other possible causes include restraint of head growth because of early engagement in the mother's pelvis or sharing the womb with a twin. 

If I have another child, will he/she have craniosynostosis too?

If the cranio was an isolated incident (not part of a syndrome and with no genetic history) then the chances of another child having it are very slim, approximately 4%.  If it was part of either Apert or Crouzon syndrome, the chances are about 50% that a future child may have it as well.

There are so many different methods of surgery, what determines which method is used?

The surgical method used will depend on a number of factors, some of which include type of synostosis, age of the child and surgeon's preference.

Will there be more surgeries down the road?

Although it is not the norm, it is possible that another surgery may be required and will be discussed when your surgeons explain the surgical procedure and associated risks.  Possible reasons for second surgeries include unsatisfactory cosmetic results, bone regenerating too quickly or bone not growing back.

Does craniosynostosis cause developmental delays or behaviour problems?  Any other problems?

How long are the children followed after surgery?  When can you say there is no chance of another surgery?

This site is not created or maintained by doctors and should not be used in place of medical advice from health professionals.