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Links and Resources

Links and Resources

If you know of a site that should be on this list, please let us know.

CAPPS - Craniosynostosis and Positional Plagiocephaly Support
A site started by a parent who wanted to provide support to others experiencing what she did.  Here you will find information on craniosynostosis, plagiocephaly and a wonderful support forum.

Winnipeg Children's Hospital
The Children's Hospital website, here you can find information on the hospital, directions and maps.

AboutFace
AboutFace is a national charitable organization that provides emotional,
peer and social support, resources and educational programs for individuals
with facial differences and their families. We support a broad range of
facial differences through every life stage - birth, school age, adolescent,
and adult.

MUSC Children's Hospital Craniosysnostosis Information
MUSC is located in South Carolina, this site has general information on cranio, as well as diagrams to show the affected sutures in the skull for each type of craniosynostosis.

The Craniofacial Center
Run by Dr. Jeffrey Fearon and located in Dallas, Texas.  This site has lots of information on craniosynostosis, cleft palate and craniofacial syndromes.

The World Craniofacial Foundation
Run by Dr. Kenneth Salyer and located in Dallas, Texas.